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Sunday, September 20, 2009

Riley having his EEG.



Keeping him distracted was tricky.

Riley's Story

Well, what a weekend!

Riley's health issues seem to come to a head on Thursday, with him having his second seizure.
I was giving the boys a shower after breakfast, when their shower was over I wrapped them both in towels and Zane asked to be picked up. I picked him up, but then Riley got upset, because as far as he is concerned, I am his mummy...
He started having a tantrum outside the bathroom floor. I am an ignorer of tantrums, so I walked away to dress Zane. After about 3-4 minutes I had finished dressing Zane and went in to get Riley, who seemed to have finished having his tantrum.
Zane was following me and as I rounded the corner to the bathroom door, I realised that something was seriously wrong, Riley was laying on his back and appeared to be sleeping.
I crouched down and called his name (Zane did the same thing, kneeling down by his head and calling 'Ryah'.) Riley responded, but only slightly, opening his eyes and rolling them around.
I picked him up and he was very limp, I rested his head on my shoulder, wrapped him in a towel and called my mum, who told me to call an ambulance ( something I should have done immediately, but could only think of calling mum.)
Once I had called the ambulance I called John, who hung up without asking any questions (including which hospital we should go to.)
The ambulance arrived and took us to Lyell McEwin Hospital.
We went there for his last seizure and were told that next time he had a seizure, they would do further tests.
On arriving t Lyell McEwin for that second time, we were told exactly the same thing, even though we pointed out that this was his second seizure. They seemed unwilling to spend any time doing tests on him.
Consequently John and I decided to discharged him and drove him to the Women's and Children's Hospital, where we were booked in for an EEG (Electroencephalogram.) given a blood test and a number to call for a semi private Paediatrician almost immediately.
We went home satisfied with the results and vowed that if it ever happened again we would go straight to Women's and Children's.

There were 6 weeks between Riley's first and second seizures, so we thought things would be calm for a while.
But no such luck....
On the Friday after his second seizure Riley and Zane were sitting in their highchairs eating breakfast. Emily was sitting across from them on the couch. John and I were having a coffee when we heard Emily call out 'Mum, Riley is doing something funny' we rushed in and found him hunched in his highchair having what is know as a Tonic Clonic Seizure.
I tried to get him out of his highchair while John called an ambulance. During a seizure Riley is very stiff and shaking all over, which made it very hard to get him out. When I had him out I placed him into the recovery position and spoke gently to him until he stopped shaking.
I picked him up and called his name, he responded the same as he had the previous day, with rolling eyes and a limp body. Again the ambulance arrived ( after a short pit stop at number 32 (we are number 39) John was flustered during the phone call.)
Riley and John went in the ambulance straight to the Women's and Children's Hospital and I waited for my mother-in-law to come and look after Emily and Zane. I followed shortly after. Arriving at the hospital Riley was a bit distressed, but calmed when he saw me.
He had more blood taken and a mucus test before being taken admitted and taken to a ward for observation. He slept for a few hours.
Then we went down for him to have an EEG ( results come back tomorrow.)
We stayed overnight and saw the doctor the following morning. We found out that he has Rhino virus, which seems just to be a name for a cold, but with an associated infection and slight gastro (which we knew.)
The doctor seemed to think the seizures were caused by the infection. But we will wait to find out the results of the EEG. If the results are clear, it's basically a waiting game but if they come back that there is something unusual Riley will have an MRI, which involves General Anaesthetic.
He has been very sooky and a big Mummy's Boy since we came home from the hospital, but that's to be expected I guess.

Monday, September 7, 2009

Trying Something New...

As an avid user of Facebook, I am finding it more and more frustrating that I can only express my thoughts on my children, husband and life in general in a few sentences on a status update. So I have decided to start writing Blogs, as an oportunity to share and document the 'surprising' moments that happen in my life on almost a daily basis. I am hoping that this is something I can stick to, and also that it will be something I enjoy doing.

By writing my thoughts and opinions, I am hoping to gain some clarity in my head and my life...